ACT Cerebellar Hypoplasia Support Network Incorporated
The role of the ACT Cerebellar Hypopslasia Support Network includes, but is not limited to:
Providing a supportive and collaborative network for families affected by this condition;
Providing assistance and advice (especially to families with newly diagnosed children);
Sharing information about this condition;
Raising funds to financially assist families with affected children who are within the Australian Capital Territory (ACT);
Sharing resources, such as specialised toys and equipment; and Providing links to the various local (ACT) services available to assist families.
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ACT Council of Parents and Citizens Associations
The ACT Council of Parents & Citizens Associations is the peak body for P&C Associations of government primary schools, high schools and secondary colleges in the Australian Capital Territory (ACT).
Council is a non-profit, non-government representative Organisation whose objectives are to foster a quality public education system; provide support services for affiliates; and make representations to Government on behalf of parents of Government school students.
Since 1954, Council has played an important role in promoting parent participation in schools and the system as a whole.
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ACT Council of Social Service Inc
The ACT Council of Social Service (ACTCOSS) is the peak representative body for Community Organisations providing services and support for low-income households and people experiencing disadvantage in the Australian Capital Territory.
ACTCOSS has been an independent voice for the ACT community for over 40 years.
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ACT Down Syndrome Association Inc.
The aims of the Association are to provide support and information to families with a member who has Down Syndrome;
to promote improvements in the quality of life of persons with Down Syndrome;
and to stimulate, within the wider community, an awareness of the very real abilities and needs of people with Down Syndrome.
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ACT Eden Monaro Cancer Support Group
The ACT Eden Monaro Cancer Support Group has been operating since 1986, and provides financial and emotional support to cancer patients and their families.
The Group is there to help with the day to day expenses that occur when a patient is diagnosed with Cancer, and try and take some of the burden away from the patient, and let them get on with dealing with their cancer.
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ACT Hepatitis C Council
The ACT Hepatitis C Council is a community-based Organization representing people in the ACT who are affected by the hepatitis C virus. This is done through contributions to Territory-based policy responses; lobbying for change; the provision of advocacy, support and/or referral for those affected; and the development and implementation of educational initiatives.
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ACT ME/CFS Society
The ACT Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Society exists to give support and help to its members;
provide information about ME/CFS, Fibromyalgia and related illnesses and their treatment to members, medical practitioners and the public;
and promote research.
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ACT Rescue and Foster (ARF)
ACT Rescue and Foster (ARF) Inc. is an incorporated association of people in the Canberra and surrounding region, who rescue dogs from euthanasia, and foster them temporarily in homes for as long as it takes to find them loving, permanent homes.
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Advocacy For Inclusion Inc.
The mission of Advocacy for Inclusion is to provide information, education and representation, to effectively advocate for positive and inclusive outcomes for people who have a disability.
Advocacy for Inclusion Inc is working with people who have a disability, family, friends and others, for a more inclusive society.
It provides individual and systemic advocacy, to improve life for people who have a disability.
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AIDS Action Council of the ACT
The AIDS Action Council of the ACT provides a comprehensive range of HIV/AIDS related services to the ACT community, aimed at eliminating further transmission of HIV, and minimising the personal and social impacts of HIV infection. It is a community-based Organisation which provides information, referral and support for people affected by the Human Immunodeficiency Virus (HIV).
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Al-Anon/Alateen
For over 50 years, Al-Anon (which includes Alateen for younger members) has been offering hope and help to families and friends of alcoholics.
The Al-Anon Family Groups are a fellowship of relatives and friends of alcoholics who share their experience, strength, and hope, in order to solve their common problems. Al-Anon believes that alcoholism is a family illness, and that changed attitudes can aid recovery.
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Alcohol and Drug Foundation, ACT
(ADFACT)
ADFACT was established in Canberra in 1976, as a response to the community’s growing concern at the escalating use of drugs, especially among young people. ADFACT aims to reduce the impact of substance use in our community, through treatment, education, support, and research.
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Alcohol and Other Drugs Council of Australia
The Alcohol and other Drugs Council of Australia (ADCA) is the peak, national, non-government Organisation representing the interests of the Australian alcohol and other drugs sector, providing a national voice for people working to reduce the harm caused by alcohol and other drugs.
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Alcoholics Anonymous
Membership in Alcoholics Anonymous (AA) is open to men and women who have a genuine desire to stop drinking alcohol. Members share their experience, strength and hope with each other… with a view toward helping each other solve their common problem!
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Alzheimer's Australia ACT
The vision of Alzheimer’s Australia is for a society committed to the prevention of dementia, while valuing and supporting people living with dementia.
The mission of Alzheimer’s Australia is to provide services to people living with dementia and the wider community.
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Amnesty International Australia
Amnesty International Australia (AIA) is part of a worldwide movement of people who are united by a determination to work for a world where everyone enjoys human rights.
AIA’s vision is of a world in which every person enjoys all of the human rights enshrined in the Universal Declaration of Human Rights, and other international human rights standards.
AI is concerned solely with the impartial protection of human rights.
World wide, Amnesty International has more than 1.8 million members.
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Arthritis Foundation of the ACT Inc.
The Arthritis Foundation of the ACT Inc (Arthritis ACT) was established in 1977 with the aim of improving the quality of life of people in the ACT with arthritis, osteoporosis and other musculoskeletal conditions. It is affiliated with the Arthritis Foundation of Australia (AFA) and with affiliates in all other States.
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Asthma Foundation ACT
The Asthma Foundation ACT aims to provide information and support for people with asthma, their carers and the community regarding the nature and treatment of asthma.
We promote awareness of asthma in the community, by providing asthma information, and by delivering asthma education programs.
Our service includes Information services; Education and training; Health promotion; Advocacy.
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Baptist Community Services
Baptist Community Services NSW & ACT (BCS) is a large not-for-profit Christian Organisation, operating in NSW and the ACT, and is one of Australia's premier Organisations providing residential and community based services.
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Barnardos ACT
Barnardos ACT provides services that successfully help prevent and reverse the effects of abuse, neglect and homelessness, on children and young people.
Barnardos Canberra Centre has been operating for over 35 years, during which time, there have been many changes in program development. Barnardos Children's Family Centre in Canberra offers family support, substitute care and supported accommodation services for disadvantaged children, adolescents and their families in the ACT and surrounding areas.
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Belconnen Community Service Inc.
Belconnen Community Service is a community owned and managed incorporated association involved in the provision of a range of services for families and individuals living in the Belconnen Region and the ACT. These services are provided on a not-for-profit basis, and are partly or wholly funded by government grants, donations and clients contributions.
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Camp Quality
Camp Quality is committed to bringing hope and happiness to every child living with cancer, their families, and communities, through ongoing quality recreational, educational and financial support programs.
Camp Quality passionately believes in the 'power of fun' in helping children and their families overcome the challenges that cancer brings.
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Canberra After Suicide Support Group
Provides a safe place for parents, spouses, siblings, children, relatives, lovers, partners, companions, and friends of those who have died by suicide, to come together for acceptance; understanding; support; sharing; talking; listening; respect; information.
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Canberra Fathers and Children Service
Canberra Fathers and Children Service Inc. (CANFaCS) is a values-based Community Organisation working and advocating for social justice within a narrative and solution-focused framework.
To further its values and goals, CANFaCS has as its objective, the strengthening of relationships between men, their families and their communities, through strategies and activities that address homelessness; domestic violence; and the quality of men’s family relationships and parenting skills.
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Canberra Men's Centre
As a not-for-profit service, The Canberra Men’s Centre aims to provide aid, relief and support to men, especially where there are needs arising from:
distress, suffering, disadvantage and marginalisation;
mental or physical disability – health problems, drug or alcohol related needs;
poverty, financial misfortune, destitution or powerlessness;
family and relationship dysfunction or social isolation;
age, illiteracy or innumeracy, education or employment status, or
indigenous, cultural or linguistic background.
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Canberra & Queanbeyan Attention Deficit Disorder Support Group
The Canberra & Queanbeyan ADD Support Group (ADDACT) is a member of SHOUT Inc (Self Help Organisations United Together).
ADDACT creates community awareness of Attention Deficit Disorder (ADD) through various mediums.
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Canberra Region Kidney Support Group
The Canberra Region Kidney Support Group (CRKSG) began in 1993, in response to the needs of Renal Patients and their Families.
The objectives of the Group are:
Provide support to the renal patients and their families and friends;
Generate community discussion and understanding of the issues related to organ donation and transplantation;
Be actively involved in education about renal disease and renal failure within the wider Canberra Community;
Raise funds to assist disadvantaged patients in need of medical equipment, to purchase and acquire equipment to enhance the quality of life for dialysis patients.
Please note that the Canberra Region Kidney Support Group is currently experiencing problems with their website.
Contact Details for the Group are as follows...
CRKSG
PO Box 5051
GARRAN ACT 2605;
Leave a telephone message at: Self Help Organisations United Together (SHOUT) Office during business hours (9am - 5pm) Eastern Australian Time:
International - 61 2 6290 1984;
Domestic - 02 6290 1984;
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Canberra Shepherd Centre
The Canberra Shepherd Centre works with children who are deaf and hearing impaired to teach them to speak and communicate in the hearing world. The approach focuses on listening as the foundation for developing spoken language, through the use of hearing devices such as hearing aids or cochlear implants.
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Cancer Council ACT
The Cancer Council ACT is a Community Organisation that provides information; health awareness creation sessions; health education; supportive care services; and research grants, aimed at reducing the incidence and impact of cancer in the ACT Community.
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CanTeen
CanTeen, The Australian Organisation for Young People Living with cancer, is a national support organisation for young people (aged 12-24) living with cancer. This includes Patients, Siblings and Offspring. CanTeen was created by young cancer patients, and its policies are guided by young people living with cancer.
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Care Australia Ltd
CARE Australia is the largest non-political, non-religious, Overseas Aid Organisation in the country, providing humanitarian assistance across the globe. It was formed in 1987, by former Prime Minister, Malcolm Fraser.
As a member of the CARE International family, CARE Australia works wherever there is a need, and wherever we can assist. We abhor discrimination on the grounds of race, gender, age, and political or religious beliefs.
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Carers ACT
Carers ACT is the single provider of comprehensive carers’ support services in the ACT.
Carers ACT provides quality information, direct support services to unpaid family carers including young carers.
Carers ACT also provides community education, advocacy, and are the ‘voice’ of carers in the ACT.
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Communities@Work
Communities@Work provides information, support, advocacy, referral and case management services. Also provides coordination of services for people with a disability and the elderly, and transport for people unable to access public transport. It offers a variety of programs for families, men and women, youth and social groups. Youth programs also run out of Weston Creek Community Centre.
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Cystic Fibrosis Association ACT
The Cystic Fibrosis Association of the ACT was formed to support persons living with CF in the ACT and surounding regions.
The Cystic Fibrosis Association of the ACT provides financial support, physiotherapy devices, vitamins, information and other assistance to their members.
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Diabetes Australia - ACT
Diabetes Australia–ACT (DA–ACT) is a not-for-profit Organisation.
DA-ACT’s purpose is to help all people with diabetes, their families and those at risk, and to contribute to the prevention of diabetes.
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Directions ACT
DIRECTIONS ACT regards access to health and related services as a fundamental human right.
For people who use alcohol and/or other drugs, access includes being able to obtain knowledge of health options relevant to their needs.
It includes the ability to choose between and utilise services unhindered by discrimination, stereotyping or prejudice.
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Domestic Violence Crisis Service
The Domestic Violence Crisis Service:
provides crisis intervention, advocacy, referral, information, support and practical assistance for people subjected to, or using, violence and abuse in relationships, giving priority to those subjected to violence;
encourages those who use violence and abuse in relationships to take responsibility for, and cease, this behaviour;
addresses the problem of violence and abuse in personal relationships, and associated issues by -
(i) working collaboratively with other agencies;
(ii) providing education and information;
(iii) promoting and being the embodiment of leading practice policy and programs; and
(iv) initiating and participating in data collection and research.
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Dragons Abreast
A dragon boat team, comprising breast cancer survivors and their supporters. Provides a "face" for the breast cancer statistics, whilst spreading the message of breast cancer awareness, through participation in the wonderful and strenuous sport of dragon boat racing.
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Early Childhood Intervention Australia
Early Childhood Intervention Australia (ECIA) provides a national focus and forum; promotes the public profile of Early Childhood Intervention; facilitates effective liaison and advocacy in the community; and fosters quality information and service provision. Services include organisation of seminars and workshops, and a national conference every two years.
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Epilepsy Association (ACT)
Provides services for people with epilepsy; their families; and the community.
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Families ACT Inc.
Families ACT Incorporated (FACT Inc) was launched by Sandra Lambert, CEO of the Department of Disability, Housing and Community Services, providing a new voice for family support in the ACT.
FACT Inc evolved from the Family Support and Parenting Network (FSPN), previously the largest network of Organisations working in family support in the ACT and region. The new body has been formed to represent the interests of families, and the range of services which support families and individuals in the ACT and surrounding region.
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Family Based Respite Care Inc (FaBRiC)
FaBRiC provides respite and social support to families living in the ACT who have a child or young person with a disability aged between 0 - and 20 years. This includes moderate, severe or profound disabilities, of an intellectual, physical, sensory, medical or behavioural nature.
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Guide Dogs NSW/ACT
Guide Dogs NSW/ACT provides services to assist every person with vision impairment in New South Wales and the ACT. It provides advice and training in Orientation and Mobility, so people can get around more safely and independently.
In New South Wales and the ACT, there are around 100,000 people with a vision impairment severe enough to cause problems with daily living. Services are there for all of them!
Last year alone, Guide Dogs NSW/ACT instructors travelled over three quarter of a million kilometres, to make sure that, wherever possible, mobility skills are taught in the environment in which they will be used.
Guide Dogs NSW/ACT also work with local government, architects, transport authorities and businesses, on ways to improve facilities for people with a vision impairment.
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Gungahlin Regional Community Service (GRCS)
Gungahlin Regional Community Service (GRCS) is a not-for-profit, community-based Organisation providing services to the Gungahlin Community in four office sites and five school sites across Gungahlin region.
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Haemophilia Foundation ACT
Haemophilia Foundation ACT (HFACT) is an incorporated body,
representing people and their families affected by Haemophilia,
Von Willebrand's disease, and other bleeding disorders in the city of Canberra, and the surrounding region of the Australian Capital Territory and southern New South Wales.
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Hartley Lifecare Inc.
Hartley Lifecare Incorporated (formerly the ACT Society for the Physically Handicapped Inc.) is a registered not-for-profit Organisation, dedicated to supporting people with severe physical disabilities, their carers and families living within the Australian Capital Territory and surrounding New South Wales region.
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Heart Support Australia - ACT
Heart Support-Australia is the only national heart support organisation of its kind in Australia. HS-A provides, in collaboration with medical practitioners, allied health professionals and community organisations, an organised approach to the enhancement of quality of life for the more than 2 million Australians and their families affected by cardiovascular disease and heart conditions.
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Home Help Service ACT Inc.
Home Help Service is a Community Sector not-for-profit Organisation that provides quality in-home support to the elderly, frail aged, people with disabilities and their carers in the ACT under the Home and Community Care (HACC) program.
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Homelessness Australia
Homelessness Australia, formerly known as The Australian Federation of Homelessness Organisations (AFHO), is the national peak body working to prevent and respond to homelessness in Australia.
Homelessness Australia seeks to improve community awareness and understanding of the issues facing the 1 in every 200 Australians who are homeless. It advocates for people who are homeless; aims to represent the interests of more than 1,300 homeless assistance services; and contributes to policy development and evaluation of Australia’s homeless service system.
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Koomarri
Koomarri is the ACT and surrounding districts leading service provider for people with a disability and for their families.
Koomarri supports people with a disability to ‘lead full and abundant lives’ through achieving and maintaining employment, and by living and participating in their communities. Koomarri provides community support and employment services for over 350 people with moderate to severe disabilities, and their families, in the ACT and surrounding districts.
Koomarri’s long history of supporting people with a disability and their families, provides a wealth of experience and knowledge. This is vital to shape how these supports are delivered. Koomarri’s Vision and Values statements, reflect this inheritance.
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Legacy Club of Canberra Inc.
Legacy is dedicated to the care of the dependants of veterans who died on active service or subsequently, including current defence force personnel killed on hazardous duty or while training for operations.
Legacy is a uniquely Australian Organisation, established in 1923, by ex-servicemen dedicated to the task of caring for the widows and dependants of their comrades.
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Lifeline Canberra
Lifeline Canberra aims to help people and communities make healthy choices, that affirm life, relieve distress, and enhance well being. It seeks to place counselling, training, and information services, within the reach of every Australian, widening the circle of those who participate in and benefit from its services.
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Lone Fathers Association
The Australian Lone Fathers Association (LFAA) has been in operation at the National level since 1975, and is a National Peak Body.
The Australian Capital Territory Lone Fathers Association was established in 1973.
LFAA now operates a branch network that has earned a national reputation with international standing, for promoting fairness, equity, and the need for improved justice in Family Law.
The organisation joins with other affiliated groups, in promoting the status of the family, maintaining family values as a priority in welfare community programs, and sustaining 'family' as an issue throughout development of government social strategy.
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Marymead Child and Family Centre
Marymead Child and Family Centre is a local community-based child and family service.
Marymead works to preserve and support families, and care for children and young people who can't be at home.
Marymead has grown up as part of the local community for 40 years, serving Canberra through Canberra's support.
Established in 1967, Marymead is a not-for-profit community welfare service, located in Narrabundah, ACT. Marymead operates under the auspices of the Catholic Archdiocese of Canberra and Goulburn.
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Mental Health Foundation
The Mental Health Foundation (ACT) is a non-government agency, established in 1984, with an innovative approach to the delivery of high quality services for people with a mental illness… an involvement in mental health promotion at the community level… and a strong commitment to effective consumer participation in all of its activities.
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Mental Illness Fellowship of the ACT
The Mental Illness Fellowship of the ACT, formerly Canberra Schizophrenia Fellowship, was formed in March 1980, by concerned relatives, in response to the problems of families with a member who had a major psychiatric illness. These problems ranged from medical and social, to accommodation, financial, and the difficulty of finding and retaining employment.
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Multiple Sclerosis Society of the ACT
The Multiple Sclerosis Society of the ACT has been providing services, care and assistance for people with MS, their carers and their families since 1978.
Today, the society is staffed by full time and part time employees, contractors and volunteers. The society seeks to ensure that funds are used to maximise services and facilities for those with MS. The society's funding needs are met, mainly through the fundraising efforts of members, volunteers and staff. Over 95% of the Society's funds are raised through the raffles, READ-a-thons, other special events, membership fees, donations and bequests.
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NAPCAN Foundation
The NAPCAN Foundation aims to prevent the abuse and neglect of children, by inspiring all Australians to take responsibility for children's wellbeing. It strives for equal relationships with children and everyone else, through a mutual respect for each other's wishes and rights.
NAPCAN's Mission is to prevent the abuse and neglect of children, by inspiring all Australians to take responsibility for children's wellbeing.
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Narcotics Anonymous
Narcotics Anonymous is a non-profit, international, Community-Based Organisation for recovering addicts, active in over sixty countries.
Narcotics Anonymous (NA) members learn from one another, how to live drug-free, and recover from the effects of addiction in their lives.
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National Aboriginal Community Controlled Health Organisation (NACCHO)
The National Aboriginal Community Controlled Health Organisation (NACCHO) is the national peak Aboriginal health body representing Aboriginal Community Controlled Health Services throughout Australia.
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National Brain Injury Foundation
The National Brain Imjury Foundation was established some 20 years ago, by a small group of people in Canberra, after they became involved in helping the families of two patients with severe acquired brain injury. After their injured family members had received acute care in hospitals, the families were told that there was little more that the healthcare system could do for them. Not wishing to abandon their family member to permanent consignment to a nursing home, the families had taken the patients home, and sought to provide them with the best possible opportunity for cognitive and physical rehabilitation. To attempt this, the families were guided by the philosophy of Dr Ted Freeman, and assisted in applying his ideas by those friends who were subsequently to constitute the NBIF.
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National Heart Foundation of Australia
As Australia's leading heart health charity, The Heart Foundation carries out life-saving work in order to reduce the suffering caused by cardiovascular disease.
The Heart Foundation is an independent Australia-wide, non-profit Health Organisation, funded almost entirely by donations from Australians. The Heart Foundation's purpose is to improve the heart health of Australians, and to reduce disability and death from heart, stroke and blood vessel disease by:
promoting and conducting research to gain and apply knowledge about heart, stroke and blood vessel disease, its prevention and treatment;
promoting and influencing behaviour which improves heart and blood vessel health by conducting education and other programs directed at health professionals, those with heart disease, and the Australian community at large.
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Open Family Australia Inc.
Open Family Australia Inc supports homeless young people who are at risk of abuse, exploitation, self-destruction and alienation. It operates a foster care program for young people; and an indigenous foster care program. It also runs a street-work program for young people who are disconnected from their community, and not actively linked into other services.
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PANDSI Inc.
PANDSI is a Community Organisation that provides information and support to families affected by Post or Ante Natal Depression in the ACT area.
PANDSI was originally formed through the amalgamation of two Support Groups in the ACT. The original ‘self-help’ group began in the early 1980’s supporting women and their families through their experience of post natal depression.
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Pegasus Riding for the Disabled ACT
Pegasus Riding for the Disabled of the ACT is a not-for-profit Community Organisation that provides equestrian activities for people with a disability.
Pegasus is located at Pegasus Farm, on the outskirts of Canberra.
Pegasus aims to provide all clients with safe and correct coaching in the arts of riding, driving, vaulting, and horse-mastership. Horse riding exercises the whole body, improving muscle development and tone, coordination and balance. Working with horses, encourages responsible and caring attitudes, and helps with confidence, self-esteem, communication skill, leadership and trust. All participants are able to enjoy equestrian activities, in circumstances appropriate to their abilities, and in a pleasant and socially integrated setting.
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People Living With HIV/AIDS (PLWHA)
PLWHA is part of a world wide movement to empower and support people living with HIV/AIDS and their partners, friends and families to live full, creative and meaningful lives free from fear, ignorance and prejudice. The aim of PLWHA is direct... It wants to maintain and improve the quality of life for everyone living with HIV/AIDS.
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People With Disabilities ACT Inc.
Originally formed as an arm of the Australia wide Disabled Peoples' International in 1981, PWD ACT has continued as a peak consumer body, representing people with disabilities who live in the Australian Capital Territory.
People With Disabilities ACT Inc. works to provide people with disabilities in this region with a voice of their own. It brings together people who have problems in accessing the community, and works with the community, government and private sectors to remove unnecessary barriers.
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Respite Care ACT Inc
Respite Care ACT Inc. is a Canberra-based Community Organisation that provides quality support to people with disabilities; the frail aged; people with mental health issues; and also the primary carers of these groups of clients.
Support is provided to people in their homes and in the community
on a one to one basis in the ACT area.
All clients must be over 18 years of age.
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Rural Health Education Foundation
Originally established in 1992, the Rural Health Education Foundation provides independent, accredited education services to general practitioners and other health professionals working in rural and remote Australia.
Our mission is to improve health outcomes in rural and remote Australia, by providing an outstanding and accessible distance education service, that supports the recruitment and retention of rural and remote General Practitioners and health professionals.
The Mission of the Rural Health Education Foundation is to improve health outcomes in rural and remote Australia, by providing an outstanding and accessible distance education service, that supports the recruitment and retention of rural and remote General Practitioners and health professionals.
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Sailability ACT
Sailability ACT Inc is a not for profit community organisation run entirely by volunteers. Our motto "Freedom on the Water" means just that. Sailability ACT aims to allow people of the greater Canberra region to experience the joy of sailing in safety, regardless of ability, age, gender or race. We have a strong focus on sailing for people with a disability.
Sailing takes place at our Lake Tuggeranong Boatshed, on Mortimer Lewis Drive Greenway, from October until April, Sundays from 12 to 4pm. All equipment is supplied, and experience is not required. There is also a small group of sailors who gather for social sailing on Tuesdays from 11am. There are no volunteers available on Tuesdays.
Sailability ACT aims to provide sailing at whatever level you choose, whether it be to gain new skills, for fun, for therapeutic reasons or competitively. Membership and sailing fees apply.
For further information, please phone Pat Gabriel on 6281 0987
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Salvation Army Community Services
Provides crisis assistance and emergency relief… through counselling; referral; family mediation; emotional support; food vouchers; furniture; clothing; and emergency financial assistance.
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Sharing Places Inc.
Sharing Places is a dynamic Organisation which provides quality services to adults with high support needs, to enhance their quality of life through:
recognition of each individual's rights, evolving needs, skills and potential;
promotion of their inclusion and citizenship as valued members of the community.
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SHOUT (Self Help Organisations United Together)
SHOUT operates as an umbrella Organisation for Member Self-Help Groups, providing:
a point of contact for clients and member Organisations;
a referral point for the public;
an Information Resource Centre.